Lack of dignity for older patients
The Dignity in Practice study followed a number of national reports showing that the NHS does not always treat older people with care, dignity and respect and that the lack of dignified care provided in acute NHS Trusts is a major source of complaint.
‘The aims of the research were to identify in a systematic way the quality of dignified care experienced by older people admitted to acute NHS Trusts and if and why there were variations in its provision,’ said Professor Michael Calnan, of Kent’s School of Social Policy, Sociology and Social Research, who carried out the research with Dr Win Tadd of Cardiff University.
‘The study examined provision of dignified care across 16 wards in four acute NHS Trusts in England and Wales. We observed practice on the wards and interviewed patients, families, ward staff and managers. We found that the majority of staff were concerned to provide dignified care to older people but that care provision was variable.’
In the four Trusts selected, the 16 acute wards were generally seen to be poorly designed to meet the needs of their main users, older people, and not ‘ideal’ as a place to treat older people with dignity, as the physical environment was frequently confusing and inaccessible. Many older people commented on the disempowering nature of acute wards and the boredom resulting from the lack of communal spaces and activities. This can add to the disorientation experienced by many older people on admission to hospital. The majority of older people interviewed expressed concern about being in close proximity to patients of the opposite gender.
The majority staff view was that, while doing their best, they were often ill-equipped in terms of their knowledge and skills to care for older people, especially when an acute illness is compounded by physical and mental co-morbidities. Staff workload on the observed wards allowed little opportunity for engagement with individuals. Many of the staff interviewed recognised these issues but concluded that it was the older person who was in the ‘wrong place’. This, together with the assumption that there must be a better place for patients to be, could suggest an underlying ageism.
The research also showed that NHS staff are motivated to represent patients’ interests but were frequently frustrated by systemic and organisational factors. Many of the staff interviewed mentioned several factors which all impacted on the care of older people resulting in them being frequently moved within the system. These included: the setting of acute Trust priorities on the basis of measurable performance indicators; a culture of blame; the management of ‘secondary risks’; high bed occupancy rates together with increased specialisation and rationalisation. These resulted in a perceived drain on hospital resources and an inability to deliver appropriate standards of care. These systemic and organisational factors were also found to impact on the sense of dignity experienced by many of the ward staff interviewed resulting in their demoralisation.
The findings were backed up by four stakeholder workshops involving 150 NHS staff, voluntary bodies and policy makers from across England. Stakeholders agreed that the research findings were typical of their local organisations as well, suggesting that the findings are widely applicable.
Dr Win Tadd, of the ESRC Centre for the Economic and Social Aspects of Genomics (CESAGEN), who led the study, said: ‘The first of the six core values in the NHS Constitution is ‘respect and dignity’ and there is evidence that positive health and social outcomes result from ensuring patients receive dignified care. However, this study reflects the findings of many recent research studies and independent reports highlighting the lack of dignity for older people in acute hospital wards, and provides greater understanding of the factors that enable and inhibit dignified care. There is a fundamental need for more widespread recognition that the people who most frequently arrive at acute hospitals as patients, namely, the old, the frail and those with dementia are deserving of dignified care.’
The study was commissioned and funded by the National Institute of Health Research Service Delivery Organisation and managed by the Department of Health and Comic Relief under the PANICOA (Prevention of Abuse and Neglect in the Institutional Care of Older Adults) initiative. The full report can be downloaded at http://www.sdo.nihr.ac.uk/project.php
Picture source: pixelio/Gerd Altmann
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